Impact on COVID-19 for People with Intellectual and Developmental Disabilities in NYS
OPWDD Data: September 15, 2021
OPWDD shared their latest statewide COVID-19 data regarding the number of confirmed cases of COVID-19 and deaths due to COVID-19 within the service system. A link to the data is here: https://opwdd.ny.gov/data.
- 11,249 people supported are confirmed to have had COVID-19
- 7,412 of these people reside in a certified residential facility
- There have been 676 deaths relating to COVID-19
- 16,513 staff are confirmed to have had COVID-19
Vaccination data is also available for the five distinct cohorts of individuals and staff for which OPWDD is collecting information. The following have received at least one vaccine dose as of Sept. 10, 2021:
- 88% of individuals living in certified residential settings (100% of programs reporting)
- 36.3% of the total staff working in certified residential settings (100% programs reporting)
- 34.4% of the total staff associated with day and waiver services, excluding residential and family care (with 84.5% programs reporting)
- 47.7% of adults (18 and over) receiving day, waiver and case management services, excluding residential and family care (100% programs reporting)
- 54% of Care Managers
OPWDD has been publishing statewide data regarding COVID-19, which is regularly updated and can be viewed here. As a reminder, New York state maintains data on cases by county here.
The Arc New York Federal District Impact Sheets
The Arc New York created a package of Federal District Impact Sheets to use as a tool in conversations with Federal legislators about the impact of our organization within their district. Each sheet outlines the number of people served, number of employees, budgeted revenue, and total cost of employee salaries and benefits at each chapter in a legislator's district, as well as the total impact of all Chapters in that district. Similar materials at the state level will be forthcoming. The sheets are organized by district number. You can find your district and representative here. Please keep in mind, your Chapter may extend to multiple legislative districts.
We encourage you to share these with your legislators as you carry the Federal call to support the Better Care Better Jobs Act, HCBS Funding, and sustainable, quality supports people with I/DD.
NYDA Releases I/DD Workforce Emergency Report
New York Disability Advocates (NYDA) released a report that highlights the current workforce crisis in the state’s intellectual and developmental disabilities (I/DD) sector. The 2021 NYDA survey results capture data from January 1 through April 30, 2021 and includes data from 118 providers agencies which represent approximately 60% of statewide voluntary program funding for the field. The survey showed that statewide, provider agencies have an average 24.75% vacancy rate for direct care staff.
The NYDA report contains recommendations for implementation by policymakers to increase staff salaries and wages, systemic fixes such as a credential and career ladders and enhancements including tuition reimbursement, subsidies and other innovative solutions.
NADSP 12-Month Survey on Delivering Supports During the Pandemic
The National Alliance for Direct Support Professionals (NADSP) and the University of Minnesota announced they are conducting a 12-month follow-up on providing support during the COVID-19 pandemic. This survey is intended to capture information on the DSP experience. Their initial report was released in July 2020, followed by a six-month follow-up report.
This survey differs from the previous ones, most notably in that it touches on vaccination status and vaccine hesitancy. We encourage all Chapters to circulate the survey widely and promote DSP participation.
The survey can be completed here.
CQL Study on COVID-19 Impact on Quality of Life
The Council on Quality and Leadership (CQL) conducted a study on the impact of COVID-19 on the quality of life for people with intellectual and developmental disabilities (I/DD). The study relies on data from over 2,000 Personal Outcome Measure (POM) interviews between 2018 and 2020. The study also references the reports published by Syracuse University that relied on The Arc New York COVID-19 data.
The CQL report draws attention to the funding cuts, closure of programs, and the escalating staffing crisis as influencing factors on decreased quality of life. This study offers bit of a different perspective than previous studies, as those have focused almost exclusively on health measures.
COVID-19 Data Project
The Arc New York is collaborating with New York Disability Advocates (NYDA) and Syracuse University on an ongoing project to collect and analyze weekly COVID-19 data from voluntary I/DD providers, including all Chapters of The Arc New York. This data helps inform our understanding of the risks of COVID-19 for people with I/DD, strengthen our pandemic response, and support our advocacy efforts. The published studies, along with media and academic coverage citing the project, can be found below. A Data Project year in review update can be found here: https://www.thearcny.org/news/covid-19-resources/covid-19-data-project.
Study on COVID-19 Cases in Nursing Homes Post-Vaccine
The Center for Health Policy Evaluation in Long-Term Care published a report on COVID-19 case rates at nursing homes. The study included a comparison of nursing homes who received early doses of COVID-19 vaccine to those that had not. Notably, the nursing homes that had the earlier vaccine availability experienced a 48% decline in cases, compared to a 21% decline among those nursing homes without the vaccine.
This is the first study of its kind and the results show a promising outcome as a result of vaccination. The New York Times published a story on the study, which can be read here. https://www.nytimes.com/interactive/2021/02/25/us/nursing-home-covid-vaccine.html.
Q & A on the Pandemic Status at The Arc Jefferson – St. Lawrence
Q: Will the residences start to use the new,15 minute at-home tests?
A: At this time, we are working with physicians to determine if a person should be tested based on symptoms. If it is recommended, we take the resident to have the testing, so it is not being done at the residential sites. Anyone who has COVID-like symptoms is taken for a test. Additionally, if a person has been potentially exposed, staff will contact the primary care provider and follow their direction.
All residents are given a COVID-19 symptom check twice daily and the staff are checked at the beginning of each shift and after 12 hours, if they are still on site. The accuracy of the new 15 minute tests is not yet known and we look forward to seeing more data in the future.
Q: If a resident or person supported has signs of an illness how will the agency respond? What is your testing and quarantine protocol? How will the agency respond to a positive case?
A: The people we support have their temps checked two times daily, along with COVID-19 checks completed. The results are documented and monitored by nursing. Staff temperatures and COVID-19 checks are completed at the beginning of each shift and every 12 hours thereafter.
If a resident is showing signs or is ill, we will follow the recommendation of the nurse which will, in most cases, prompt for them to be seen by a physician. We will then follow the recommendations of the physician and/or the local Dept. of Health (DOH), if indicated.
At this time we do not have an active isolation unit in either county and would isolate in place at the residence. The resident would have their own room and would be limited in leaving that room until after the quarantine time with the exception of using the bathroom. Cleaning, sanitizing and the use of PPE by staff would be followed, as is standard at this time. We would follow all protocols of our governing entities: DOH, CMS and OPWDD.
If necessary, we presently do have a site in St. Lawrence County we could reopen as an isolation unit. Many other Arc Chapters have isolated in place with success. We still are limiting staff to working one location as much as possible to limit spread.
Q: Given the infection is far more prevalent in the North Country now than when day habs., residences and the workshop were locked down in the spring, is the agency contemplating another closure/lockdown, and if so when?
A: We are keeping a close eye on it. We are utilizing facilities with large areas for people to spread out and everyone is wearing PPE. We also follow strict protocols for cleaning and sanitizing. Visitors are discouraged and are screened if it is necessary for them to enter the building.
We are not allowing anyone who is not feeling well to report to work and staff are monitoring those who work in this environment closely. If the numbers continue to rise in the counties then we will look at ending production by those supported for a time.
We also have State guidance to follow if we are designed one of the counties with the yellow, orange and red designation.
Q: If parents want to remove their children, can they be tested immediately prior to being brought home?
A: People supported can be tested at the Urgent Care facilities. I do not believe they can go to the county testing sites unless recommended by public health or a physician. If they go home for any extended period of time, we would request they be tested before coming back and may be subject to quarantine in the site.
FACTS ABOUT COVID-19 VACCINES WEBINAR
Please take some time to watch The National Alliance for Direct Support Professionals’ 15-minute video addressing the efficacy and safety of the COVID-19 vaccine, as well as some common myths. The COVID-19 vaccines are now here and becoming widely available. As this is good news, we also know there is some confusion and worry among people about the efficacy and safety of the vaccine. In this webinar, NADSP in partnership with the American Academy of Developmental Medicine & Dentistry (AADMD) will address vaccine concerns: https://nadsp.org/webinar-covid-19-what-dsps-need-to-know/?mc_cid=170f1faf45&mc_eid=8f07b4a970.
COVID-19’s Impact on the Employment of People Living with Disabilities
NYSID President and CEO Maureen O’Brien appeared on The Sanctuary for Independent Media podcast for a conversation on COVID-19’s Impact on the Employment of People with Disabilities.
O’Brien discusses the challenges with securing employment opportunities for people with disabilities stating that there was a 67% unemployment rate for people with disabilities prior to the pandemic and this rate has risen with the onset of COVID-19. Additionally, services and supports provided by non-profit organizations are fiscally challenged with a 20% withhold on state funding in addition to changes in Medicaid reimbursements for services. All of this impacts the delivery of services. O’Brien recommends a wholistic approach to understanding employment of individuals with developmental disabilities. When individuals are employed either full-time or part-time, they are fulfilling their goals and as a result will require less in the form of SNAP benefits, SSI and possibly other fiscal supports. O’Brien calls for a prioritization by the state for funding for supports and services to nonprofits. There are many legislative champions and she encourages people to reach out to elected officials and ask them to prioritize individuals with developmental disabilities.
The Sanctuary for Independent Media is a telecommunications production facility dedicated to community media arts. They host screenings, production and performance facilities, training in media production and a meeting space for artist, activists, and independent media makers of all kinds. Click here to hear O’Brien’s Podcast with them.